National specialised medical care

As part of the national specialised medical care assignments, Skåne University Hospital meets criteria to provide the best possible care.
National specialised medical care means that a certain type of highly specialised healthcare is centralised in the country, in order to achieve higher quality and better use of resources. It is healthcare for rare diseases that demand highly competent staff of specialists, and sometimes advanced medical equipment. Skåne University Hospital has been assigned national specialised medical care areas by the Swedish National Board of Health and Welfare.

Paediatric Surgery

The assignment covers surgical procedures on children and adolescents in three areas: diaphragmatic hernia, malformations in the oesophagus and pelvic floor, bowel, and urinary tract.

Skåne University Hospital has been assigned this together with Karolinska University Hospital. For Skåne University Hospital, this amounts to about 50 patients per year.

Endometriosis

Since 1 January 2021, Skåne University Hospital, the women's healthcare area also provides some endometriosis care as national specialised medical care.

Cardiac surgery in children and adolescents

Skåne University Hospital in Lund has a national centre for paediatric cardiac surgery that provides national care. Around 250 children and adolescents from all over the country undergo surgery here every year. More than half of all patients are less than one year old.

Cardiac surgery in adults with congenital heart defects

Cardiac surgery on adults with congenital heart defects was one of the first areas to become a national healthcare.

Skåne University Hospital in Lund provides national healthcare in this area. They perform about 20 operations each year on adults with congenital heart defects.

Heart and lung transplantation

Skåne University Hospital in Lund provides highly specialised care within heart transplantation and performs around 30 heart transplantations a year.

Skåne University Hospital in Lund also provides national specialised medical care within lung transplantation. Around 15 lung transplantations are performed here each year.

Mesh surgery for prolapse

The women's healthcare at Skåne University Hospital has been assigned to provide national specialised medical care in prolapse mesh surgery.

Primary rehabilitation of spinal cord injuries

Skåne University Hospital provides care for various forms of spinal cord injuries within the assignment to provide national specialised medical care. These can be injuries after accidents or injuries caused by illness, such as inflammation or oxygen deficiency.

Advanced diagnosis and treatment of primary sclerosing cholangitis (PSC)

Skåne University Hospital is one of five hospitals in Sweden that provides national specialised medical care for primary sclerosing cholangitis (PSC), a liver disease that may eventually lead to cancer of the biliary tract.

Surgery for penile cancer

Skåne University Hospital is one of two hospitals in Sweden that provides national specialised medical care for certain types of penile cancer. The assignment focuses on advanced surgery, which is needed by approximately 140-160 patients in Sweden each year.

Transjugular intrahepatic portosystemic shunt (TIPS)

Skåne University Hospital is one of four hospitals in Sweden that provides national specialised medical care in the treatment of transjugular intrahepatic portosystemic shunt (TIPS). The treatment is mainly used when diseases such as cirrhosis of the liver, also known as hepatic cirrhosis, or other injuries impair the flow of blood to and through the liver.

Neuroendocrine tumours of the abdomen (NET) and advanced adrenal tumours

Skåne University Hospital is one of four hospitals in Sweden that provides national specialised medical care for neuroendocrine tumours of the abdomen (NET) and advanced adrenal tumours. In Sweden, 400-500 people a year are diagnosed with NET and 120-130 people a year with advanced adrenal tumours.

Head and neck paraganglioma

Skåne University Hospital is one of two hospitals in Sweden that provides national specialised medical care for head and neck paraganglioma, a mostly benign tumour that affects a few people in Sweden each year. The assignment involves surgical treatment, but also some investigation and follow-up.

Neuromuscular diseases

Skåne University Hospital provides national specialised medical care within the field of neuromuscular diseases. The care is provided on behalf of the National Board of Health and Welfare.

The assignment concerns rare neuromuscular diseases that affect 6,000-7,000 patients annually in Sweden and involves an in-depth neurological investigation where a diagnosis has not been made.

Stem cell transplantation for treating systemic sclerosis

Systemic sclerosis is an autoimmune disease that causes the body's immune system to incorrectly target the body's own tissues. Individuals with severe systemic sclerosis can be treated through autologous stem cell transplantation. This means that the patient's own stem cells are taken from the blood, purified and then returned. 

Annually, Skåne University Hospital treats 100 patients who have been diagnosed with various ailments using autologous stem cell transplantation. The university has well-developed research in diagnostics and treatment options for patients with systemic sclerosis and other autoimmune diseases. One of the world's most extensive long-term studies on patients with systemic sclerosis is being conducted here.

Chronic pulmonary diseases in children

The National Board of Health and Welfare has commissioned Skåne University Hospital to provide national highly specialised care for children suffering from certain chronic pulmonary diseases.

The commission involves providing care when any of the following four diagnoses are made:

• Primary ciliary dyskinesia (PCD)
• Chronic obstructive pulmonary diseases of unclear origin and/or that are refractory
• Bronchiectasis, that is, diseases of the bronchial tree, or other secondary lung damage
• Congenital central hypoventilation syndrome (CCHS), other chronic respiratory disorders, and children in need of assisted ventilation.

Care in cases of retinopathy of prematurity (ROP)

Retinopathy of prematurity (ROP) is a retinal disease that can develop in babies born prematurely, and means that blood vessels in the retina grow incorrectly. This can result in severe visual impairment or blindness unless it is treated in time. In Sweden, approximately 40-50 patients need treatment for severe ROP each year.

Skåne University Hospital is one of three hospitals tasked with providing national highly specialised care for certain care in cases of retinopathy of prematurity (ROP).

More about the National specialised medical care framework (socialstyrelsen.se/en)

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